- About
- Membership
- What we do
- What we do placeholder
- Pediatric Nephrology Training
- IPNA programs
- Joint Projects
- Resources
- Resources
- History Project
- Education Materials
- For patients and parents
- News & Events
- Industry
GREAT CARE FOR LITTLE KIDNEYS. EVERYWHERE.
Manual for parents and patients Renal Pediatric Transplant Unit
Technique For Urine Culture in Children
Manual for parents and patients From the Peritoneal Dialysis Unit
Information for patients and parents for care after pediatric renal transplant
Information for care after pediatric renal transplant
Video on renal diseases in infancy
Information for the community regarding common nephrological diseases Topic Link Nephrotic Syndrome Sindrome nefrotico UTI Sindrome de mala eliminacion UTI…
Site helps patients and family members who are going through or have gone through the complicated process of pediatric transplantation
Information for Parents on the Congenital Anomalies of the Kidney and Urinary tract in a Downloadable Document
Information For Parents on Exercise, Diet, Blood Pressure Control, and Preservation of Kidney Function in a Downloadable Document
IPNA Clinical Practice Recommendations for the Diagnosis and Management of Children with Steroid-resistant Nephrotic Syndrome
IPNA Patient Brochure for the Diagnosis and Management of Children With SRNS
Website offers fact sheets on UTI, urinary catheters and urine samples.
Website offers information sheets on a wide range of renal and urological conditions in children.
Website offers a wide range of information on the functions of the kidneys, detection of renal disease and support for…
A discussion of vesico-ureteral reflux. Additional pediatric nephrology topics accessible from links on the page.
Detection of renal anomalies by antenatal ultrasound.
Fact sheet on the relationship between low birth weight and preterm deliveries and CKD.
Fact sheet on the presentation, complications and management of PUVs.
Fact sheet on the causes and management of CKD in infants and children.
Fact sheet on the presentation and management of the nephrotic syndrome in children.
Fact sheet on cystinosis including the causes, symptoms and treatment of the disease.
Brief information on pediatric renal diseases. The NGO’s main objective is to give some financial and psychological support to families…
The site has a page dedicated to the community with different topics: general health, renal health, patients rights and basic…
Organ Procurement and Transplantation Network from the US Health and Human Services Site
Site helps patients and family members who are going through or have gone through the complicated process of pediatric transplantation
Information for Parents on the Congenital Anomalies of the Kidney and Urinary tract in a Downloadable Document
Information For Parents on Exercise, Diet, Blood Pressure Control, and Preservation of Kidney Function in a Downloadable Document
IPNA Clinical Practice Recommendations for the Diagnosis and Management of Children with Steroid-resistant Nephrotic Syndrome
Family resources for many pediatric renal disorders.
General pediatrics topics and many pediatric nephrology topics including Bed-Wetting, Taking Your Child’s Blood Pressure, Clean Intermittent Catheterization for Boys…
A not-for-profit organization with the mission of supporting patients and families living with atypical Hemolytic Uremic Syndrome.
A booklet from Montreal Children’s Hospital for families with children with hydronephrosis in pdf format.
General information on kidney diseases (adults)
IPNA Clinical Practice Recommendations for the Diagnosis and Management of Children with Steroid-resistant Nephrotic Syndrome
IPNA Patient Brochure for the Diagnosis and Management of Children With SRNS
Official website of HKPNS with patient education materials.
Official website of HKKF with patient education materials and support programs
Data provision on kidney diseases.
Official website of HKKF with patient education materials and support programs
Data provision on the recent advance of medical Science in China.
Data provision on Genetic kidney disease in China.
Aims to increase the quality of life for kidney patients, relatives and donors
IPNA Clinical Practice Recommendations for the Diagnosis and Management of Children with Steroid-resistant Nephrotic Syndrome
IPNA Patient Brochure for the Diagnosis and Management of Children With SRNS
IPNA clinical practice recommendations for the diagnosisand management of children with steroid-sensitive nephrotic syndrome
Site offers info on the university’s clinical services, research activities and educational services.
Site offers clinical services, research activities and educational services.
Research, Educational Material, Biopsy Requests.
Site helps patients and family members who are going through or have gone through the complicated process of pediatric transplantation
IPNA Clinical Practice Recommendations for the Diagnosis and Management of Children with Steroid-resistant Nephrotic Syndrome
IPNA Patient Brochure for the Diagnosis and Management of Children With SRNS
IPNA Clinical Practice Recommendations for the Diagnosisand Management of Children with Steroid-Sensitive Nephrotic Syndrome
Patients association, aiming at enhancing physical activity after transplantation, Part of the International Sport Games for Transplanted Patients.
IPNA Patient Brochure for the Diagnosis and Management of Children With SRNS
IPNA Clinical Practice Recommendations for the Diagnosis andManagement of Children with Steroid Sensitive Nephrotic Syndrome
Page set up by relative of patients with Atypical HUS with information and support for patients
Patient association; Parental information on alport syndrome
IPNA Patient Brochure for the Diagnosis and Management of Children With SRNS
IPNA Patient Brochure for the Diagnosis and Management of Children With SRNS
Site helps patients and family members who are going through or have gone through the complicated process of pediatric transplantation
IPNA Patient Brochure for the Diagnosis and Management of Children With SRNS
IPNA Clinical Practice Recommendations for the Diagnosisand Management of Children with Steroid-sensitive Nephrotic Syndrome
Page on HUS from the Experimental Zooprophylactic Institute of Venice.
Page on HUS from the Italian Portal of Epidemiology For Public Health.
Association for citizens undergoing dialysis, organ transplantation, conservative treatment for chronic kidney disease, and their families.
Non-profit organization aiming at the prevention and early detection of renal disease, diffusion of transplantation, and promoting the dialogue between patients, healthcare professionals and…
It promotes and participates in training, information and awareness and support for scientific research in the field of collecting and…
Educational activities medical staff, doctors and nurses, patients and their families, Prevention campaigns and health education.
Parental information about rare kidney diseases and pediatric nephrology services with specific expertise. Social assistance on law benefits.
Facilitate the meeting of patients and their families to exchange ideas and experiences; Promote the study and research on cystinosis.
Guidelines and information about the Society
IPNA Clinical Practice Recommendations for the Diagnosis and Management of Children with Steroid-resistant Nephrotic Syndrome
IPNA Patient Brochure for the Diagnosis and Management of Children With SRNS
IPNA clinical practice recommendations for the diagnosis and management of children with steroid sensitive nephrotic syndrome
Website contains guidelines, contact information, forthcoming events
IPNA Clinical Practice Recommendations for the Diagnosis and Management of Children with Steroid-resistant Nephrotic Syndrome
IPNA Patient Brochure for the Diagnosis and Management of Children With SRNS
IPNA clinical practice recommendations for the diagnosisand management of children with steroid-sensitive nephrotic syndrome
Contains information on CKD, hypertension, Renal stones, UTI, PKD, SLS, Dialysis and Transplantation.
UTI in Children – downloadable document
Site helps patients and family members who are going through or have gone through the complicated process of pediatric transplantation
Information for patients and families onsupport programs for CKD and RRT patients.
IPNA Clinical Practice Recommendations for the Diagnosis and Management of Children with Steroid-resistant Nephrotic Syndrome
IPNA Patient Brochure for the Diagnosis and Management of Children With SRNS
Posters, leaflets, books, articles and videos discussing pediatric renal disorders
Site helps patients and family members who are going through or have gone through the complicated process of pediatric transplantation
Information for Parents on the Congenital Anomalies of the Kidney and Urinary tract in a Downloadable Document
Information For Parents on Exercise, Diet, Blood Pressure Control, and Preservation of Kidney Function in a Downloadable Document
IPNA Clinical Practice Recommendations for the Diagnosis and Management of Children with Steroid-resistant Nephrotic Syndrome
IPNA Patient Brochure for the Diagnosis and Management of Children With SRNS
Information on Poststreptococcal Glomerulonephritis (PSGN)
IPNA Clinical Practice Recommendations for the Diagnosis and Management of Children with Steroid-resistant Nephrotic Syndrome
IPNA Patient Brochure for the Diagnosis and Management of Children With SRNS
Site offers educational services and info on conferences of interest.
This is a patient organization which offers meetings, activities for young patients, family camps. They also produce a lot of…
Guide For Patients and Families on Autosomal Dominant Polycystic Kidney Disease
Site helps patients and family members who are going through or have gone through the complicated process of pediatric transplantation
IPNA Clinical Practice Recommendations for the Diagnosis and Management of Children with Steroid-resistant Nephrotic Syndrome
Portuguese Society for Patients with Kidney Disease
Site helps patients and family members who are going through or have gone through the complicated process of pediatric transplantation
IPNA Clinical Practice Recommendations for the Diagnosis and Management of Children with Steroid-resistant Nephrotic Syndrome
IPNA Patient Brochure for the Diagnosis and Management of Children With SRNS
IPNA Clinical Practice Recommendations for theDiagnosis and Management of Children with Steroid-Sensitive NephroticSyndrome
IPNA Clinical Practice Recommendations for the Diagnosis and Management of Children with Steroid-resistant Nephrotic Syndrome
IPNA Patient Brochure for the Diagnosis and Management of Children With SRNS
IPNA Clinical Practice Recommendations for the Diagnosis and Management of Children with Steroid-resistant Nephrotic Syndrome
IPNA Patient Brochure for the Diagnosis and Management of Children With SRNS
Source for information on many renal and non-renal disorders
IPNA Clinical Practice Recommendations for the Diagnosis and Management of Children with Steroid-resistant Nephrotic Syndrome
Site offers info on kidney disease, news and events from SA, research grants and links to other websites.
Site offers info on the kidney, renal failure and diet in renal diseases.
Site offers info on events, nephrology training, practice guidelines and SA renal registry.
Caring for the well-being of individuals affected by renal diseases, advancing the field of renal care through innovation and education
IPNA Clinical Practice Recommendations for the Diagnosis and Management of Children with Steroid-resistant Nephrotic Syndrome
IPNA Patient Brochure for the Diagnosis and Management of Children With SRNS
Main nephrological diseases in children
IPNA Clinical Practice Recommendations for the Diagnosis and Management of Children with Steroid-resistant Nephrotic Syndrome
IPNA Patient Brochure for the Diagnosis and Management of Children With SRNS
IPNA clinical practice recommendations for the diagnosisand management of children with steroid-sensitive nephrotic syndrome
IPNA Clinical Practice Recommendations for the Diagnosis and Management of Children with Steroid-resistant Nephrotic Syndrome
IPNA Patient Brochure for the Diagnosis and Management of Children With SRNS
This is the website of cystinosis established by Turkish cystinosis family association.
Contains educational material on hypertension for patients.
Patients section contains information on UTI, VUR, Enuresis, CKD, AKI, CAKUT.
IPNA Clinical Practice Recommendations for the Diagnosis and Management of Children with Steroid-resistant Nephrotic Syndrome
IPNA Patient Brochure for the Diagnosis and Management of Children With SRNS
Organ Procurement and Transplantation Network from the US Health and Human Services Site
Site helps patients and family members who are going through or have gone through the complicated process of pediatric transplantation
Information for Parents on the Congenital Anomalies of the Kidney and Urinary tract in a Downloadable Document
Information For Parents on Exercise, Diet, Blood Pressure Control, and Preservation of Kidney Function in a Downloadable Document
IPNA Clinical Practice Recommendations for the Diagnosis and Management of Children with Steroid-resistant Nephrotic Syndrome
IPNA Patient Brochure for the Diagnosis and Management of Children With SRNS
Nationally accredited (Information Standard) Information on Rare renal diseases.
Organ Procurement and Transplantation Network from the US Health and Human Services Site
Site helps patients and family members who are going through or have gone through the complicated process of pediatric transplantation
Information for Parents on the Congenital Anomalies of the Kidney and Urinary tract in a Downloadable Document
Information For Parents on Exercise, Diet, Blood Pressure Control, and Preservation of Kidney Function in a Downloadable Document
IPNA Clinical Practice Recommendations for the Diagnosis and Management of Children with Steroid-resistant Nephrotic Syndrome
IPNA Patient Brochure for the Diagnosis and Management of Children With SRNS
General information, diagnosis, treatment, videos from experts; patient registry,clinical trials; patient support/connections; physiician recommendations.
Downloadable document with information sheet on the nephrotic syndrome
We’re happy to announce that you can download our free app from now on.
