- About
- Membership
- What we do
- What we do placeholder
- Pediatric Nephrology Training
- IPNA programs
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- History Project
- Education Materials
- For patients and parents
- News & Events
GREAT CARE FOR LITTLE KIDNEYS. EVERYWHERE.
Page on HUS from the Experimental Zooprophylactic Institute of Venice.
Page on HUS from the Italian Portal of Epidemiology For Public Health.
Association for citizens undergoing dialysis, organ transplantation, conservative treatment for chronic kidney disease, and their families.
Non-profit organization aiming at the prevention and early detection of renal disease, diffusion of transplantation, and promoting the dialogue between patients, healthcare professionals and…
It promotes and participates in training, information and awareness and support for scientific research in the field of collecting and…
Educational activities medical staff, doctors and nurses, patients and their families, Prevention campaigns and health education.
Parental information about rare kidney diseases and pediatric nephrology services with specific expertise. Social assistance on law benefits.
Facilitate the meeting of patients and their families to exchange ideas and experiences; Promote the study and research on cystinosis.
Scientific and legal support to people with Alport Syndrome and other rare genetic diseases and their families. Search for and…
This is the website of cystinosis established by Turkish cystinosis family association.
Contains educational material on hypertension for patients.
Patients section contains information on UTI, VUR, Enuresis, CKD, AKI, CAKUT.
Detection of renal anomalies by antenatal ultrasound.
Fact sheet on the relationship between low birth weight and preterm deliveries and CKD.
Fact sheet on the presentation, complications and management of PUVs.
Fact sheet on the causes and management of CKD in infants and children.
Fact sheet on the presentation and management of the nephrotic syndrome in children.
Patients association, aiming at enhancing physical activity after transplantation, Part of the International Sport Games for Transplanted Patients.
Contains information on CKD, hypertension, Renal stones, UTI, PKD, SLS, Dialysis and Transplantation.
Website contains guidelines, contact information, forthcoming events
General information, diagnosis, treatment, videos from experts; patient registry,clinical trials; patient support/connections; physiician recommendations.
Topics: Care of a Foley Catheter, Dialysis, Hypertension, Kidney Failure, UTI.
Topics: Diabetes and Kidney Problems, Dialysis, Hypertension, Kidney Failure, UTI (Urinary Tract Infection).
Information regarding bedwetting and incontinence.
General information on kidney diseases (adults)
Site offers info on the university’s clinical services, research activities and educational services.
Site offers clinical services, research activities and educational services.
Research, Educational Material, Biopsy Requests.
Information for patients and families onsupport programs for CKD and RRT patients.
Site offers educational services and info on conferences of interest.
Information on Kidney diseases and their early detection as the first steps in the prevention.
Manual for parents and patients Renal Pediatric Transplant Unit
Information for patients and parents for care after pediatric renal transplant
Information for care after pediatric renal transplant
Video on renal diseases in infancy
Information for the community regarding common nephrological diseases Topic Link Nephrotic Syndrome Sindrome nefrotico UTI Sindrome de mala eliminacion UTI…
Website offers fact sheets on UTI, urinary catheters and urine samples.
Website offers information sheets on a wide range of renal and urological conditions in children.
Website offers a wide range of information on the functions of the kidneys, detection of renal disease and support for…
Fact sheet on cystinosis including the causes, symptoms and treatment of the disease.
Brief information on pediatric renal diseases. The NGO’s main objective is to give some financial and psychological support to families…
Organ donation orientation and laws. Brazilian transplant registry news.
The site provides the community with booklets on normal growth and development according to age groups, nutrition and frequently asked…
The site has a page dedicated to the community with different topics: general health, renal health, patients rights and basic…
This is a patient organization which offers meetings, activities for young patients, family camps. They also produce a lot of…
Books and videos on living with reduced kidney function from the Canadian Kidney Knowledge Translation and Generation Network.
Infographic on planning for dialysis from the Canadian Kidney Knowledge Translation and Generation Network.
Educational tools including modules, booklets, activity sheets, and glossary from the Canadian Kidney Knowledge Translation and Generation Network.
Family resources for many pediatric renal disorders.
General pediatrics topics and many pediatric nephrology topics including Bed-Wetting, Taking Your Child’s Blood Pressure, Clean Intermittent Catheterization for Boys…
A not-for-profit organization with the mission of supporting patients and families living with atypical Hemolytic Uremic Syndrome.
A booklet from Montreal Children’s Hospital for families with children with hydronephrosis in pdf format.
Official website of CKF, non- governmental organization providing funding support and various programs to paediatric nephrology patients.
Official website of HKPNS with patient education materials.
Official website of HKKF with patient education materials and support programs
Data provision on kidney diseases.
Official website of HKKF with patient education materials and support programs
Data provision on the recent advance of medical Science in China.
Data provision on Genetic kidney disease in China.
Website offering information on renal diseases, dialysis and transplantation
A discussion of vesico-ureteral reflux. Additional pediatric nephrology topics accessible from links on the page.
Patient association; Parental information on alport syndrome.
Site offers info on kidney disease, news and events from SA, research grants and links to other websites.
Site offers info on the kidney, renal failure and diet in renal diseases.
Site offers info on events, nephrology training, practice guidelines and SA renal registry.
Nationally accredited (Information Standard) Information on Rare renal diseases.
Web and paper-based programme comprosing information and questionaires on transition for families of children with long term conditions.
Web and paper-based Nationally accredited (Information Standard) Information on conditions, treatments, practical information all linked via user-friendly web platform.
Quick guide for patients and parents Automatized Peritoneal Dialysis
Main nephrological diseases in children
Page from the Hungarian National Kidney Program on the nephrotic syndrome.