IPNA Partners Forum - IPNA Online - International Pediatric Nephrology Association

Bayer

Novartis

Sobi

Vertex

IPNA Industry Partners Forum (IPF) Mission

Create strong relationships between IPNA and industry partners devoted to improving the lives of children around the world with kidney disorders, including ultra-rare and rare disorders, focused on all important outcomes such as quality of life, improved survival and less morbidity as well as effective transition to adult care providers.

Industry Partners

IPNA IPF Structure

IPNA will designate a IPF Chair and a group of individuals from IPNA (IPNA IPF Leadership Group) to coordinate activities and attend IPF meetings. Each Industry Partner (IP) will designate at least one or preferably two IP representatives to serve as contacts between the Company and IPNA, to attend biannual IPF meetings, and pursue mutually beneficial scientific, educational and advocacy opportunities with IPNA.

Chair: John D. Mahan

Activities for IPF members will include:

One live in person meeting each year with the IPNA IPF leadership group (in conjunction with an international scientific meeting, such as ASN)
One or two virtual meetings with the IPNA IPF leadership group
Opportunity to arrange meetings between an industry partner team and select IPNA members
Opportunity to be highlighted as IPNA IPF member on the IPNA website, newsletters, and materials related to upcoming IPNA educational meetings
Methods provided by IPNA by which approved messages (e.g., solicitation of grant applications
or requests for investigator participation in clinical trials) can be conveyed to IPNA members from the Company.

IPNA IPF Benefits For IPNA

Opportunities to collaborate with industry in understanding needs of children with kidney disorders and assist in development of new treatments and evaluation methods
Ability to pursue advocacy efforts and special projects in cooperation with industry partners
Funding for broad range of IPNA educational, research and advocacy activities

For Industry Partners

Goodwill and name recognition within the global Pediatric Nephrology Community
Greater understanding of theneeds ofPediatric Nephrologists and their patients
Access to the Pediatric Nephrology Community on topics of interest to industry
Clinical trial support, including developing research projects and identifying effective clinical research sites
Advocacy efforts – partnership with IPNA when missions align
Opportunities to collaborate with industry in understanding needs of children with kidney disorders and assist in development of new treatments and evaluation methods
Ability to pursue advocacy efforts and special projects in cooperation with industry partners
Funding for broad range of IPNA educational, research and advocacy activities
Sponsor symposia and educational activities for healthcare professionals and patients/families

IPNA IPF Membership Fees

For IPF membership, industry partners agree to participate actively at biannual IPF meetings, share insight and expertise with IPNA, and submit an annual dues payment of $20,000, made payable IPNA on the anniversary of the date of the industry partner’s initial membership, unless a different date has been agreed upon by both the Company and IPNA.
Dues payments not received within 90 days of the annual payment due date will result in the Company being placed on inactive status, with loss of Board member privileges.

IPNA IPF Structure

Activities for IPF members will include:

IPNA IPF Membership Fees

If you are interested in becoming a part of IPNA Partners Forum, please contact us at ipnafoundation@theipna.org

IPNA App is here.